Tuesday, 30 June 2015

Wageningen University's Science Shop study for SailWise - Disability and accessible outdoor leisure and tourism

People with disabilities face specific challenges to accessing and participating in outdoor leisure and tourism activities. However, societies throughout the world are starting to recognise the importance of creating not only equal opportunities for access and participation but also opportunities specifically catering to the needs, concerns and interests of people with disabilities. For over 40 years, the Dutch non-profit organisation, SailWise, for example, has offered people with physical, sensory or cognitive disabilities the opportunity to engage in sailing activities in the Netherlands. Its goal is to help people with a diverse range of disabilities engage in outdoor sports and leisure activities, giving them the opportunity to have fun which challenging themselves physically and mentally in a safe, social and relaxed setting that is both financially and physically accessible to participants and their families. 

SailWise has approached Wageningen University’s Science Shop for assistance with i) optimising supply and demand for the outdoor activities it offers, ii) sustaining and improving the organisation’s operations and iii) improving its communication with prospective participants, volunteers, sponsors and other practitioners in the rapidly developing ‘accessible tourism’ sector. The project, led by Dr Francien de Jonge for Wageningen University’s Science Shop, will run until late 2016 and is comprised of several smaller projects. Two small projects have been completed by MSc and BSc students in June 2015, and there will be additional MSc thesis opportunities for interested students in 2016 (see below).

MSc supervision opportunities
Dr Meghann Ormond (GEO) and Dr Lenneke Vaandrager (HSO) contribute to the Sail Wise Science Shop project, and they are looking for MSc thesis students who would like to contribute to this project starting in February 2016. Students would be co-supervised by Dr Ormond and Dr Vaandrager. We are looking for 2 students, one MLE student and one MCS (Health and Society) student who are encouraged to get involved in this project in order to help shed light on issues like: i) why certain populations may or may not be interested joining a SailWise excursion, ii) who SailWise is currently targeting as prospective participants and who they might be missing out on, iii) what are participants’ expectations and experiences prior to, during and after their excursions, and iv) how best these expectations and experiences can be translated into improved practices within Sail Wise and communicated to a wider range of audiences. These two students will closely work together, but will have their own specific research (based on their own interests). For further details, contact meghann.ormond (at) wur.nl or lenneke.vaandrager (at) wur.nl


Useful references on accessible outdoor leisure and tourism 
Aitchison, C. (2003). From leisure and disability to disability leisure: Developing data, definitions and discourses. Disability & Society, 18(7), 955-969.
Aitchison, C., 2003. Venturing into other territories: Reflections on theoretical journeys of social and cultural exclusion in outdoor environments. In: B. Humberstone, H. Brown & K. Richards, eds. Whose Journeys?. Barrow-in-Furness: The Institute for Outdoor Learning, pp. 19-31.
Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. San Francisco, London: Jossey-Bass.
Bartholomew, K .J., Ntoumanis, N., Ryan, R. M., Bosch, J. A. & Thøgersen-Ntoumani, C. (2011). Self-determination theory and diminished functioning: The role of interpersonal control and psychological need thwarting. Personality and Social Psychology Bulletin, vol. 37(11), 1459-1473.
Bartlett, R., 2012. Modifying the diary interview method to research the lives of people with dementia. Advancing qualitative methods, 22(12), pp. 1717-1724.
Beart, S. et al., 2001. Barriers to accessing leisure opportunities for people with learning disabilities. British Journal of Learning Disabilities, Issue 29, pp. 133-138.
Beckett, A., 2005. Reconsidering Citizenship in the Light of the Concerns of the UK Disability Movement. Citizenship Studies, 9(4), pp. 405-421.
Blaxter, M. (1976). The meaning of disability: a sociological study of impairment. London: Heinemann.
Blichfeldt, B. S., & Nicolaisen, J. (2011). Disabled travel: Not easy, but doable. Current Issues in Tourism, 14(1), 79-102.
Boelsma-Hulsman, C., n.d. Antenne voor autisme- Handreikingen voor het geven van waardevolle lessen levensbeschouwing aan leerlingen met een stoornis in het autisme spectrum, s.l.: s.n.
Booth, T. & Booth, W., 1996. Sounds of Silence: Narrative research with inarticulate subjects. Disability & Society, 11(1), pp. 55-70.
Bowling, A. & Ebrahim, S. (2005). Handbook of health research methods: Investigation, measurement and analysis. Berkshire New York: Open University Press.
Brown, T. J., Kaplan, R. & Quaderer, G. (1999). Beyond accessibility: Preference for natural areas. Therapeutic Recreation Journal, vol. 33(3), 209-221.
Buhalis, D. & Darcy, S. (2011), Accessible tourism: Concepts and approaches. Great Britain: Charlesworth Press.
Burnett, J. J., & Baker, H. B. (2001). Assessing the travel-related behaviors of the mobility-disabled consumer. Journal of Travel Research, 40(1), 4-11.
Burns, N., Paterson, K., & Watson, N. (2009). An inclusive outdoors? Disabled people’s experiences of countryside leisure services. Leisure Studies, vol. 28(4), 403-417.
Burns, N., Paterson, K. & Watson, N., 2013. Risky bodies in risky spaces: disabled people’s pursuit of outdoor leisure. Disability & Society, 28(8), pp. 1059-1073.
Buttimer, J. & Tierney, E., 2005. Patterns of leisure participation among adolescents with mild intellectual disability. Journal of Intellectual Disabilities, 9(1), pp. 25-42.
Campbell, E. & Jones, G. (1994). Psychological well-Being in wheelchair sport participants and nonparticipants. Adapted Physical Activity Quarterly, vol. 11(4), 404-415.
Carmichael, A., 2002. User involvement in community care policies: does it fulfil or dissipate the vision of disability rights campaigners, s.l.: University of Leeds.
Cazini, J. & Frasson, A. C. (2013). Voices project: Technological innovations in social inclusion of people with visual impairment. Journal of Technology Management & Innovation, vol. 8(special issue), 147-153.
Clawson, M., & Knetsch, J. L. (1966). Economics of outdoor recreation. Baltimore: John Hopkins University Press.
Cohen, E. (1979). A phenomenology of tourist experiences. Sociology, 13(2), 179-201.
Coleridge, P. (2000). Disability and culture. In M. Thomas, & M. J. Thomas (Eds.), Selected readings in Community Based Rehabilitation series 1: CBR in transition (pp. 21-38). Bangalore: Asia Pacific Disability Rehabilitation Journal Group.
Connelly, L. M. et al., 1993. A Place to be Yourself: Empowerment from the Client's Perspective. Journal of Nursing Scholarship, 25(4), pp. 297-303.
Crawford, D. W., & Godbey, G. (1987). Reconceptualizing barriers to family leisure. Leisure sciences, 9(2), 119-127.
Crompton, J. L. (1979). Motivations for pleasure vacation. Annals of tourism research, 6(4), 408-424.
Daniels, M. J., Rodgers, E. B. D., & Wiggins, B. P. (2005). “Travel Tales”: an interpretive analysis of constraints and negotiations to pleasure travel as experienced by persons with physical disabilities. Tourism Management, 26(6), 919-930.
Darcy, S. & Dickerson, T. J. (2009). A whole-of-life approach to tourism: The case for accessible tourism experiences. Journal of Hospitality and Tourism Management, vol. 16(1), 32–44
Darcy, S. (1998). Anxiety to Access: The Tourism Patterns and Experiences of New South Wales People with a Physical Disability. Sydney: Tourism New South Wales.
Darcy, S. (2003). The politics of disability and access: the Sydney 2000 Games experience. Disability & Society, vol. 18(6), 737-757.
Dattilo, J., 2002. Inclusive Leisure Service: Responding to the rights of people with disabilities. 2 ed. State College, PA: Venture Publishing, Inc..
Dattilo, J., Hoge, G. & Malley, S. M., 1996. Interviewing people with mental retardation: validity and reliability strategies. Therapeutic recreation journal volume, 15(3), pp. 163-178.
De Bruijn, J., Buntinx, W. & Iwint, B., 2014. Verstandelijke beperking: definitie en context. Amsterdam: Uitgeverij SWP.
de Klerk, M., 2002. Rapportage gehandicapten 2002, Den Haag: Sociaal Cultureel Planbureau.
Dwyer, L. & Darcy, S. (2010). Economic Contribution of Tourists with Disabilities: An Australian Approach and Methodology. In Buhalis, D. & Darcy, S. (Eds.), Accessible Tourism: Concepts and Issues (pp .213-239). Bristol: Channel View Publications
Edensor, T. (2001). Performing tourism, staging tourism: (Re)producing tourist space and practice. Tourist studies, 1(1), 59-81.
Eriksson, M. & Lindström, B. (2007). Antonovsky's sense of coherence scale and its relation with quality of life: a systematic review. Journal of Epidemiology and Community Health, vol. 61(11), 938-944.
Figueiredo, E., Eusébio, C., & Kastenholz, E. (2012). How diverse are tourists with disabilities? A pilot study on accessible leisure tourism experiences in Portugal. International Journal of Tourism Research, 14(6), 531-550.
Fitzgerald, H. (2005). Still feeling like a spare piece of luggage? Embodied experiences of (dis) ability in physical education and school sport. Physical education & sport pedagogy, 10(1), 41-59.
Flensborg-Madsen, T., Ventegodt, S. and Merrick, J. (2005) Sense of coherence and physical health: A review of previous findings. The Scientific World Journal, vol. 5, 665-673.
FlowReizen, n.d. Flow Reizen. [Online]
Fost, D. (1998). The fun factor: marketing recreation to the disabled. American demographics, 20(2), 54-58.
Freeman, I., & Selmi, N. (2009). French versus Canadian tourism: response to the disabled. Journal of Travel Research, 49(4), 471–485.
French, D., & Hainsworth, J. (2001). ‘There aren’t any buses and the swimming pool is always cold!’: Obstacles and opportunities in the provision of sport for disabled people. Managing Leisure, 6(1), 35 - 49.
Fullagar, S. & Owler, K., 1998. Narratives of Leisure: recreating the self. Disability & Society, 13(3), pp. 441-450.
Gannon, B. & Nolan, B. (2007). The impact of disability transitions on social inclusion. Social Sciences & Medicine, vol. 64(7), 1425-1437.
Gibson, H. J. (1998). Sport tourism: A critical analysis of research. Sport Management Review, 1(1), 45-76.
Gibson, H. J. (2003). Sport tourism: An introduction to the special issue. Journal of Sport Management, 17(3), 205-213.
Gibson, H. J. (2005). Understanding sport tourism experiences. Oxford: Elsevier.
Guttentag, D. A. (2009). The possible negative impacts of volunteer tourism. International Journal of Tourism Research, 11(6), 537-551.
Hahn, H. (1985). Towards a politics of disability: Definitions, discipline and policies. The Social Science Journal, vol. 22(4), 87-105.
Hartig, T., Mitchell, R., De Vries, S., & Frumkin, H. (2014). Nature and health. Annual review of public health, vol. 35(1), 207-228.
Hawe, P., Noort, M., King, L., & Jordens, C. (1997). Multiplying health gains: The critical role of capacity-building within health promotion programs. Health Policy, vol. 39(1), 29-42.
Hawkins, M., 1997. Social Darwinism in European and American thought, 1860-1945. Nature as model and nature as threat. Cambridge: Cambridge university press.
Health Education Authority (1997). Reviews of effectiveness: Their contributions to evidence-based practice and purchasing in health promotion (Workshop Proceedings) HEA, London.
Hofman, M., 2012. Afstudeeronderzoek: Jongeren met een lichte verstandelijke beperkingen seksuele gezondheid, Groningen: s.n.
Hooijmans, S., 2012. De participatiesamenleving een utopie? - Een onderzoek naar de grenzen van zelfzorg door de civil society, Utrecht: s.n.
Howe, D. (2008). The cultural politics of the Paralympic movement. London: Routledge.
Hua, K. P., Ibrahim, I., & Chiu, L. K. (2013). Sport Tourism: Physically-disabled Sport Tourists’ Orientation. Procedia-Social and Behavioral Sciences, 91, 257-269.
Imrie, R. (2001). Barriered and bounded places and the spatialities of disability. Urban Studies, vol. 38(2), 231-237.
Ingstad, B. (2001). Disability in the developing world. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 772-792). London: Sage.
Israeli, A. A. (2002). A preliminary investigation of the importance of site accessibility factors for disabled tourists. Journal of Travel Research, 41(1), 101-104.
Jennings, G., Lee, Y. S., Ayling, A., Lunny, B., Cater, C., & Ollenburg, C. (2009). Quality tourism experiences: Reviews, reflections, research agendas. Journal of Hospitality Marketing & Management, 18(2-3), 294-310.
Joye, Y. & van den Berg, A. E. (2012). Chapter 6: Restorative environments. In L. Steg, A. E. van den Berg & J. de Groot (Eds.), Environmental Psychology: An Introduction (pp. 57-66). West Sussex: British Psychological Society and John Wiley & Sons, Ltd.
Kaplan, R. & Kaplan, S. (1989). The experience of nature: A psychological perspective. New York: Cambridge University Press.
Kim, S. & Lehto, X. Y. (2013). Travel by families with children possessing disabilities : Motives and activities. Tourism Management, vol. 37, 13–24. Retrieved from http://dx.doi.org/10.1016/j.tourman.2012.12.011.
Klerk, M. de. (2007). Meedoen met beperkingen. Rapportage gehandicapten 2007. Den Haag: Sociaal en Cultureel Planbureau
Klerk, M. de., H. Fernee, I. Woittiez en M. Ras (2012). Factsheet Mensen met lichamelijke of verstandelijke beperkingen. SCP factsheet.
Koops, H. & Kwekkeboom, M., 2005. Vermaatschappelijking in de zorg: Ervaringen en verwachtingen van aanbieders en gebruikers in vijf gemeenten.. Den Haag: Sociaal en Cultureel Planbureau.
Koren, P. E., Dechillo, N. & Friesen, B. j., 1992. Measuring empowerment in families whose children have emotional disabilities: a brief questionnaire. Rehabilitation Psychology, 37(4), pp. 305-311.
Kosciulek, J. F. & Merz, M., 2001. Structural Analysis of the Consumer-Directed Theory of Empowerment. Rehabilitation Counseling Bulletin, 44(4), pp. 209-216.
Kwai-sang Yau, M., McKercher, B. & Packer, T., 2004. Traveling with a disability - more than an access issue. Annals of Tourism Research, 31(4), pp. 946-960.
Langeland, E., Wahl, A. K., Kristoffersen, K., & Hanestad, B. R. (2007). Promoting coping: Salutogenesis among people with mental health problems. Issues in mental health nursing, vol. 28(3), 275-295.
Laws, G. & Radford, J., 1998. Place, Identity, and Disability: Narratives of intellectual disabled people in Toronto. In: R. A. Kearns & W. M. Gesler, eds. Putting Health into Place. New York: Syracuse, pp. 77-101.
Lee, Y., Dattilo, J. & Howard, D., 1994. The complex and dynamic nature of leisure experience. Journal of Leisure Research, 26(3), pp. 195-211.
Lindström, B. & Eriksson, M. (2010). The hitchhiker's guide to salutogenesis. Helsinki: Tuo-kinprint Oy.
Lindström, B., & Eriksson, M. (2006). Contextualizing salutogenesis and Antonovsky in public health development. Health promotion international, vol. 21(3), 238-244.
Mans, I., 1998. Zin der zotheid. Vijf eeuwen cultuurgeschiedenis van zotten, onnozelen en zwakzinnigen. 2 ed. Amsterdam: Bert Bakker - Prometheus.
Martin, J., Adams-Mushett, C., & Smith, K. (1995). Athletic identity and sport orientation of adolescent swimmers with disabilities. Adapted Physical Activity Quarterly, 12, 113 - 123.
McAvoy, L. (2001). Research update – Outdoors for everyone: Opportunities that include people with disabilities. Parks and Recreation, vol. 36(8), 24-36.
McKercher, B., Packer, T., Yau, M.K., & Lam, P. (2003). Travel agents as facilitators or inhibitors of travel: Perceptions of people with disabilities. Tourism Management, 24(4), 465–474.
Miller, K. D. et al., 2002. Inclusive Volunteering: Benefits to Participants and Community. Therapeutic Recreational Journal, 36(3), pp. 247-259.
Mitra, S. (2006). The capability approach and disability. Journal of Disability Policy Studies, vol. 16(4), 236-247.
Moons, P., & Norekvål, T. M. (2006). Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis. European Journal of Cardiovascular Nursing, vol. 5(1), 16-20.
Morris, J. (1997). Care of empowerment? A disability rights perspective. Social Policy & Administration, 31(1), 54-60.
Murray, M. & Sproats, J. (1990). The disabled traveller: tourism and disability in Australia. Journal of tourism studies, 1(1), 9-14.
Neijmeijer, L., Moerdijk, L., Veneberg, G. & Muusse, C., 2010. Licht verstandelijk gehandicapten in de GGZ. Een verkennend onderzoek, Utrecht: Trimbos Instituut.
Nickerson, N. P. (2006). Some reflections on quality tourism experiences. In Nickerson, N.P. & Jennings, G. (Eds.), Quality tourism experiences, (pp. 227-235). Oxford: Elsevier.
Nicolaisen, J., StillingBlichfeldt, B. & Sonnenschein, F., 2012. Medical and social models of disability; a tourism providers' perspective. World Leisure Journal, 54(3), pp. 201-214.
Niesz, T., Koch, L. & Rumrill, P. D., 2008. The empowerment of people with disabilities through qualitative research. Work 31, pp. 113-125.
Oliver, M. (1996). Understanding disability: From theory to practice. New York: St Martin's Press.
Ormond, M., 2013. En route: Transport and Embodiment in International Medical Travel Journeys Between Indonesia and Malaysia. Mobilities, pp. 1-19.
Ozturk, Y., Yayli, A., & Yesiltas, M. (2008). Is the Turkish tourism industry ready for a disabled customer's market?: The views of hotel and travel agency managers. Tourism management, 29(2), 382-389.
Pagán, R. (2015). The contribution of holiday trips to life satisfaction: the case of people with disabilities. Current Issues in Tourism, 18(6), 524-538.
Page, S. J., O’Connor, E., & Peterson, K. (2001). Leaving the Disability Ghetto A Qualitative Study of Factors Underlying Achievement Motivation among Athletes with Disabilities. Journal of Sport & Social Issues, 25(1), 40-55.
Patterson, I. & Pegg, S., 2009. Serious leisure and people with intellectual disabilities: benefits and opportunities. Leisure Studies, 28(4), pp. 387-402.
Pearce, P. L. (1982). The social psychology of tourist behaviour. Oxford: Pergamon Press.
Penedo, F. J. & Dahn, J. R. (2005). Exercise and well-being: A review of mental and physical health benefits associated with physical activity. Behavioural medicine, vol. 18(2), 189-193.
Porter, M. E. (2010). What is value in health care? New England Journal of Medicine, vol. 363(26), 2477-2481.
Potvin, M.-C., Snider, L., Prelock, P. & Wood-Dauphine, S., 2013. Recreational Participation of Children with High Functioning Autism. Journal of Autism and Developmental Disorders, 43(2), pp. 445-457.
Ray, N. M., & Ryde r, M. E. (2003). “Ebilities” tourism: an exploratory discussion of the travel needs and motivations of the mobility-disabled. Tourism Management, 24(1), 57-72.
Read, S., Aunola, K., Feldt, T., Leinonen, R., & Ruoppila, I. (2005). The relationship between generalized resistance resources, sense of coherence, and health among Finnish people aged 65-69. European Psychologist, vol. 10(3), 244-253.
Renblad, K., 2003. How do people with intellectual disabilities think about empowerment and information and communication technology (ICT). International journal of rehabilitation research, 26(3), pp. 175-182.
Renders, F. & Meininger, H., 2011. Afscheid van het burgerschapsparadigma. Nederlands Tijdschrift voor de Zorg aan mensen met Verstandelijke Beperkingen , Issue 3, pp. 147-167.
Riswick, M., 2015. Developments in The Netherlands [Interview] (9 February 2015).
Rogers, E. S., Chamberlin, J., Langer Ellison, M. & Crean, T., 1997. A Consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48(8), pp. 1042-1047.
Ryan, C. (2010). Ways of Conceptualizing the Tourist Experience A Review of Literature. Tourism Recreation Research, 35(1), 37-46.
Ryan, R. M. & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, vol. 55(1), 68-78.
Saebu, M., Sørensen, M. & Halvari, H. (2013). Motivation for physical activity in young adults with physical disabilities during a rehabilitation stay: A longitudinal test of self-determination theory. Journal of Applied Social Psychology, vol. 43(3), 612-625.
SailWise. (2015). Folder Individuele Reizen [Brochure]. Enkhuizen: n.p.
Schuurman, M., 2002. Mensen met verstandelijke beperkingen in de samenleving: Een analyse van bestaande kennis en aanwijzingen voor praktijk en verdere kennisverwerving, Utrecht: Landelijk KennisNetwerk Gehandicaptenzorg.
Schuurman, M., 2003. Zelfbeschikking en eigen verantwoordelijkheid van mensen met een verstandelijke handicap, s.l.: Gezondheidsraad.
SCP, n.d. Factsheet mensen met lichamelijke of verstandelijke beperkingen, s.l.: Sociaal Cultureel Planbureau.
Shaw, G., & Coles, T. (2004). Disability, holiday making and the tourism industry in the UK: a preliminary survey. Tourism Management, 25(3), 397-403.
Sibthorp, J., 2003. An empirical look at Wals and Golins' adventure education process model: Relationships between antecedent factors, perceptions of characteristics of an adventure education experience, and changes in self-efficacy. Journal of Leisure Research, 35(1), pp. 80-106.
Singleton, J. & Darcy, S. (2013). ‘Cultural life’, disability, inclusion and citizenship: Moving beyond leisure in isolation. Annals of Leisure Research, vol. 16(3), 183-192.
Šiška, J. & Habib, A. (2013). Attitudes towards disability and inclusion in Bangladesh: From theory to practice. International Journal of Inclusive Education, vol. 17(4), 393-405.
Smith, R. W. (1987). Leisure of disable tourists: barriers to participation. Annals of Tourism Research, 14(3), 376-389.
Solish, A., Perry, A. & Minnes, P., 2010. Participation of children with and without disabilities in social, recreational and leisure activities. Journal of Applied Research in Intellectual Disabilities, Volume 23, pp. 226-236.
Sprague, J. & Hayes, J., 2000. Self-determination and empowerment: A feminist standpoint analysis of talk about disability. American journal of community psychology, pp. 671-692.
Spurway, N., Legg, S., & Hale, T. (2007). Sailing physiology. Journal of sports sciences, 25(10), 1073 -1075.
Stamboulis, Y., & Skayannis, P. (2003). Innovation strategies and technology for experience-based tourism. Tourism management, 24(1), 35-43.
Stilling Blichfeldt, B. & Nicolaisen, J., 2011. Disabled travel: not easy, but doable. Current Issues in Tourism, 14(1), pp. 79-102.
Stone, D. A. (1984). The disabled state. Philadelphia: Temple University Press.
Stumbo, N. J., Wang, Y. & Pegg, S. (2011). Issues of access: What matters to people with disabilities as they seek leisure experiences. World Leisure Journal, vol. 53(2), 91-103.
Surtees, P. G., Wainwright, N. W. J. & Khaw, K. T. (2006). Resilience, misfortune, and mortality: evidence that sense of coherence is a marker of social stress adaptive capacity. Journal of Psychosomatic Research, vol. 61(2), 221-227.
Surtees, P. G., Wainwright, N. W. J., Luben, R. L., Wareham, N. J., Bingham, S. A. & Khaw, K. T. (2007) Adaptation to social adversity is associated with stroke incidence: evidence from the EPIC-Norfolk prospective cohort study. Stroke, vol. 38(5), 1447-1453.
Taub, D. E., Blinde, E. M. & Greer, K. R. (1999). Stigma management through participation in sport and physical activity: Experiences of male college students with physical disabilities. Human Relations, vol. 52(11), 1469-1484.
Tomik, R. (2013). Active Sport Tourism – A Survey of Students of Tourism and Recreation. Journal of Tourism, Recreation & Sport Management, 1/2013, 13-20.
Trimbos Instituut, 2010. Licht verstandelijk gehandicapten in de GGZ. Een verkennend onderzoek.
Ulrich, R. S. (1986). Human responses to vegetation and landscapes. Landscape and urban planning, vol. 13, 29-44.
van den Berg, M. et al., 2004. National Monitor Geestelijke Gezondheid, Utrecht: Trimbos Instituut.
Van Gennep, A., 1997. Paradigma-verschuivingen in de visie op zorg voor mensen met een verstandelijke handicap. Maastricht(Limburg): s.n.
Van Gennep, A., 2007. Waardig leven met berperkingen. Apeldoorn: Garant.
van Leeuwen, B. & Limpens, M., 2007. Leerlingen verschillen en dat is normaal; Ideologie en praktijk van onderwijs aan leerlingen met speciale onderwijsbehoeftes, Enschede: SLO.
Verdonk, I., 2011. Ze zeggen dat we het niet kunnen. Kinderwens en ouderschap van mensen met een lichte verstandelijke beperking.. 1 ed. Assen: Koninklijke Van Gorcum BV.
Vignuda, J.L. (2003). Promotion of barrier-free tourism for people with disabilities in the Asian and Pacific region. Bangkok: United Nations Publications.
Wainwright, N. W. J., Surtees, P. G., Welch, A. A., Luben, R. N., Khaw, K. T. & Bingham, S. A. (2007). Healthy lifestyle choices: Could send of coherence aid health promotion? Journal of Epidemiological and Community Health, vol. 61(x), 871-876.
Ward Thompson, C., 2011. Linking landscape and health: the recurring theme. Landscape and Urban Planning, Issue 99, pp. 187-195.
Wood, P. (1980). International Classification of Impairments, Disabilities and Handicaps. Geneva: WHO Press.
World Health Organization (WHO) (2007). Disabilities. Retrieved from http://www.who.int/topics/disabilities/en.
World Heath Organization (WHO), (2011). International Statistical Classification of Diseases and Related Health Problems. Geneva: WHO Press.
Wuyts, B., 2010. Beeldvorming en participatie van mensen met een handicap: een historisch perspectief in de West-Europese samenleving. Ethiek & Maatschappij, 23(4), pp. 7-28.
Yau, M. K. S., McKercher, B., & Packer, T. L. (2004). Traveling with a disability: More than an access issue. Annals of Tourism Research, 31(4), 946-960.

Yiannakis, A., & Gibson, H. (1992). Roles tourists play. Annals of tourism Research, 19(2), 287-303.

Saturday, 13 June 2015

CFP: Theorizing the Body in Health and Medicine, November 26-27, 2015 - Maastricht University, NL

Theorizing the Body in Health and Medicine
An international and interdisciplinary workshop

November 26-27, 2015 - Maastricht University

For most health and medical professionals “the body” functions as a taken for granted entry point for analyzing, imaging, screening, diagnosing, curing, caring, nursing, training, and feeding people. It is also often considered as different from, and even opposed to, “the psyche” which results in sharp distinctions between somatic and mental illnesses. This biomedical idea of the body and its alleged mental counterpart has been put into question by both social constructivist oriented theories and phenomenological oriented theories. Where the first underline that the meaning of the body is intrinsically related to cultural, social and economic context, and to power relations within the health care system,  the latter explain in what sense people’s lived body experiences diverge from medical conceptions of soma and psyche. While these two theoretical approaches are both crucial for reflecting on the meaning of the body in health and medicine, they are often seen as opposing and even mutually exclusive. The aim of this workshop is to explore the meaning of the body at the intersection of these two approaches. To this purpose we will discuss topical issues in contemporary health and medicine and examine how social and cultural contexts are decisive for the labeling of bodies in terms of being healthy, sick, disabled or enhanced, while simultaneously taking seriously the individual, material, and experienced body of patients and health seekers.
   
More information and call for papers: http://www.mindthebody.eu/?page_id=977
Closing date: 15 July 2015

Thursday, 11 June 2015

New book: Bodies Across Borders: The Global Circulation of Body Parts, Medical Tourists and Professionals

Bodies Across Borders: The Global Circulation of Body Parts, Medical Tourists and Professionals

2015. Edited by Bronwyn Parry, King's College London, UK, Beth Greenhough, University of Oxford, UK, and Tim Brown and Isabel Dyck, both at Queen Mary University of London, UK

Available at: http://www.ashgate.com/isbn/9781409457183 


Abstract
Historically organised at a local or national scale, the fields of medicine and healthcare are being radically transformed by new communication, transport and biotechnologies creating, in the process, a genuinely globalised sphere of biomedical production and consumption. This emerging market is characterised by the circulation of bodily materials (tissues, organs and bio-information), patients and expertise across what traditionally have been relatively secure ontological and geographical borders. Crossing both disciplinary and geographical boundaries, this volume draws together a number of important contributions from acknowledged leaders in three respective fields: the trade in bodily commodities, biomedical tourism and migration of health care professionals. It explores and maps out the key characteristics of this emerging, although as yet poorly researched global trade, questioning how, where and why bodies cross borders, whether this exacerbates existing health inequalities and how these circulations impact on healthcare services. Considered together, the chapters in this volume invite comparisons of the ways in which body parts, patients and medical professionals cross national borders, elucidating common themes, concerns and issues. Contributors also pose important questions about the ethical and legal implications of the circulation of bodies across borders and evaluate current and future strategies for regulation.

Contents:
Preface; Introduction, Bronwyn Parry, Beth Greenhough, Tim Brown and Isabel Dyck.

Part I Corporeal Circulations: Biobanking across borders, Ruth Chadwick and Alan O’Connor; Masculinity under the knife: Filipino men, trafficking and the black organ market in Manila, the Philippines, Sallie Yea; A bull market? Devices of qualification and singularisation in the international marketing of US sperm, Bronwyn Parry.

Part II Transnational Bio-Medical Tourism: Transnational health care: global markets and local marginalisation in medical tourism, John Connell; Bioethics, transnational health care and the global marketplace in health services, Leigh Turner; Risks and challenges for patients crossing borders for infertility treatment, Wannes Van Hoof and Guido Pennings.

Part III Migrating Medical Expertise: ‘Real nursing work’ versus ‘charting and sweet talking’: the challenges of incorporation into US urban health care settings for Indian immigrant nurses, Sheba George; Nurses across borders: the international migration of health professionals, Stephen Bach.

 Part IV Regulating Bodies across Borders: Medical tourism for services legal in the home and destination country: legal and ethical issues, Glenn Cohen; Race to the bottom or race to the top? Governing medical tourism in a globalised world, Ingrid Schneider; Dislodging the direct-to-consumer marketing of stem cell-based interventions from medical tourism, Tamra Lysaght and Douglas Sipp. Index.

Reviews:
 ‘Detailing a new double movement of 21st century globalization, this compelling collection of essays underlines that disembedded market forces have far from disembodied or flattening outcomes on the ground. Instead, from global trade in organs and sperm, to the cross-border movements of medical tourists and healthworkers, we are introduced to worlds of extraordinarily uneven and unequal embodiments of global interdependency - embodiments across borders which, as the contributors explore with care, have vitally important implications for the global body politic.’
Matt Sparke, University of Washington, USA

‘This timely and fascinating collection explores a rich diversity of cultural, economic and legal practices, vividly demonstrating the intense translational flows of biomedical objects, practitioners and clientele which form part of contemporary biomedicine and their important implications for how we navigate the boundaries between ourselves and our nations.’
Anne Kerr, University of Leeds, UK

Monday, 8 June 2015

New book: New Cannibal Markets: Globalization and Commodification of the Human Body

New Cannibal Markets: Globalization and Commodification of the Human Body, Paris: Editions Maison des Sciences de l’Homme.


2015. Edited by J.D. Rainhorn and S. El Boudamoussi
Contents
Introduction
* The commodification of the human body: a cannibal market? Jean-Daniel Rainhorn
Chapter 1: Trading in the human body: historical, ethical, and religious perspectives
* (…). Barras Vincent
* Rest in Pieces: A Short Genealogy of Cannibal Markets. Jean-Jacques Courtine
*The ethics of selling body parts: more than mere commodification.  Samia A. Hurst
* Religions and commodification of the human body: Some preliminary opinions. Samira El Boudamoussi
* Regulating Commodification of the Human Body: The Roles of the Professions, Governments and International Bodies. Alexander M. Capron
Chapter 2: Wombs for rent: cases studies
* Facing couple desire. René Frydman
* States of Confusion: Regulation of Surrogacy in the United States. Seema Mohapatra
* Danish Sperm and Indian Wombs. A Short History of Fertility Tourism. Elisabeth Beck-Gernsheim
* For Motherhood and for Market: Commercial Surrogacy in India. Sarojini Nadimpally
* A Womb for Rent: Within Me, But Not Mine. The Surrogacy in Israel: Vision, Policy and Reality. Etti Samama
Chapter 3: Looting of brains: impact on health, equity and ethics
* An effect of global social inequalities. Alexandre Mauron
* An Unfair Trade? Mobility and Brain Drain of Africa's health professionals. DelanyoDovlo & Sheila Mburu
* Health worker migration, health coverage and medical tourism in Southeast Asia – implications for health equity. Nicola Suyin Pocock
* Nurse Importation by Developed Nations: Global Health Consequences and Policy Considerations. Barbara L. Brush
Chapter 4: Organs for sale
* Is Transplantation Tourism a form of Market Cannibalism? Philippe Steiner
* An overview of world transplant tourism. Jacob A. Akoh
* Strategies to prevent transplant tourism: the Spanish experience in Latin America. Rafael Matesanz & Beatriz Mahillo
* Paid kidney donation: the Iran Experience. Medicine and humanity challenge. Mitra Mahdavi-Mazdeh
Chapter 5: The human product banking industry
* Introduction. Nguyen Vinh Kim
* The commercialization of human cells and tissues : In the name of Quality and Safety. Jean-Paul Pirnay
* Ethics and transfusion medicine. Jean-Daniel Tissot, Olivier Garraud, Jean-Jacques Lefrère, Jean-Claude Osselaer
* Ownership, property rights and commercialization in relation to biobanking. Bernice S. Elger
Chapter 6: Key issues for research
* The need of a holistic and multidisciplinary research. Philippe Goyens
* From colonization to neo-colonization: commodification of human body as a new form of exploitation of international inequalities. Firouzeh Nahavandi
* Commodification of the Human Body: Is It a Gender Issue? Judit Sándor
* Advancing a Human Rights Approach to Human Trafficking for Organ Removal (HTOR). Debra Budiani-Saberi and Sean Columb
Chapter 7: Questions for the future?
* Introduction. Edward T. Kelley
* Globalisation and Commodification of the Human Body: The Response of International Law and its Challenges. Carmel Shalev
* The Exception of Medical Products of Human Origin : Towards Global Governance Tools. Luc Noël & Dominique Martin
* Principles for an ethical market. Olivier Bouin
Conclusion
Concluding remarks…. Nancy Scheper-Hughes

Sunday, 7 June 2015

New book: Handbook On Medical Tourism And Patient Mobility - Edited by Neil Lunt, Daniel Horsfall and Johanna Hanefeld

Handbook On Medical Tourism And Patient Mobility 

2015. Edited by Neil Lunt, Daniel Horsfall and Johanna Hanefeld

Available at: http://www.e-elgar.com/shop/handbook-on-medical-tourism-and-patient-mobility


20% off discount voucher [ PDF ]

Abstract
The growth of international travel for purposes of medical treatment has been accompanied by Increased academic research and analysis. This Handbook explores the emergence of medical travel and patient mobility and the implications for Patients and health systems. Bringing together leading scholars and analysts from across the globe, this Handbook's unprecedented examines the regional and national experiences of medical tourism, Including coverage of the Americas, Europe, Africa, the Middle East, and Asia. The chapters explore topics on issues of risk, law and ethics; and include treatment-focused discussions highlight patient decision-making, patient experience and treatment outcomes for cosmetic, transplantation, dental, fertility and bariatric treatment.

Reviews
'The authors take a comprehensive, multidisciplinary approach to examine key issues of the cross-border movement of Patients. State-of-the-art analysis is underpinned by extensive country studies. An essential read for policy makers, regulators, practitioners and students who want to understand, influence and shape this key dimension of the Globalisation of health.'
- Nick Drager, Honorary Professor LSHTM, Professor of Practice McGill University, Canada

'Lunt, Horsfall and Hanefield have brought together the world's leading scholars in the field for this Handbook. Collectively, they chart the course for research in medical tourism covering an exhaustive range of topics. This book is rich in both the breadth and depth of information offered in a time where medical tourism is of increasing importance to the global and domestic health policy and service provision landscape. The editors have done a superb job of steering the contributors and piecing together the various sections of the book to produce a coherent and, what is Likely to Become, definitive work. It will be essential reading for anyone with interests in the subject.'
- Robin Gauld, University of Otago, New Zealand

Contents
Introduction

PART I INTRODUCTION AND CONTEXT
1. The Shaping of Contemporary Medical Tourism and Patient Mobility
Neil Lunt, Daniel Horsfall and Johanna Hanefeld

2. Medical Tourism – Concepts and Definitions
John Connell

3. Medical Tourism by Numbers
Daniel Horsfall and Neil Lunt

4. Globalization and Trade in Health Services
Johanna Hanefeld and Richard Smith

5. Patients’ Willingness to Travel
Mark Exworthy and Stephen Peckham

6. Travelling for Value: Global Drivers of Change in the Tertiary and Quarternary Markets
Tricia J. Johnson and Andrew N. Garman

PART II MACRO-LEVEL CONSIDERATIONS
7. Health Systems and Medical Tourism
Pedro Barros

8. The Economics of Health and Medical Tourism
David Reisman

9. OECD Accounting for Trade in Healthcare 
David Morgan

10. Financing Mechanisms
Johanna Hanefeld and Richard Smith

11. The Implications of Medical Travel upon Equity in Lower and Middle Income Countries
Andrea Whittaker

12. What’s Where? Why There? And Why Care? A Geography of Responsibility in Medical Tourism
Meghann Ormond

PART III UNDERSTANDING ORGANISATIONS AND ACTIVITIES
13. A Review of Small Scale Niche Treatment Providers
Olive N.Y. Cheung

14. Regional Differences: Scope and Trust Among Medical Tourism Facilitators
Lydia L. Gan and James R. Frederick

15. Government and Governance Strategies in Medical Tourism 
Meghann Ormond and Tomas Mainil

16. Marketing Medical Tourism in Korea
Ki Nam Jin 

17. Medical Tourism and the Internet 
Daniel Horsfall and Neil Lunt

18. Networks and Supply Chains: The Nature of Medical Tourism Markets 
Neil Lunt

19. The Coming Perfect Storm: Medical Tourism as a Biosecurity Issue
C. Michael Hall 

PART IV REGIONAL DIMENSIONS OF MEDICAL TOURISM 
20. Diasporic Medical Return: Korean Immigrants’ Use of Homeland Medical Services
Jane Yeonjae Lee, Robin A. Kearns and Wardlow Friesen 

21. Culture and Medical Travel
Elisa J. Sobo

22. Use of Cross-Border Healthcare among Immigrants
Signe Smith Jervelund and Line Neerup Handlos 

23. Migration: The Mobility of Patients and Health Professionals
Margaret Walton-Roberts

24. United States (US)-Mexico Bi-National Insurance Efforts and the Prospective Impacts of Health Care Reforms in the US and Mexico
Arturo Vargas Bustamante

25. European Retirement Migration: Access to Health Care and Policy Implications
Helena Legido-Quigley and Martin Mckee

26. Medical Tourism: A Case Study of Thailand
Thinnakorn Noree

27. International Medical Travel Developments within Thailand and South-East Asia
Audrey Bochaton

28. The National Context of Medical Travel within Japan
Hiroyoshi Endo, Serina Okamura and Masafumi Toya 

29. Medical Tourism and Outward FDI in Health Services: India in South Asia
Rupa Chanda

30. Medical Tourism Developments within the Middle-East
Nabil M. Kronfol

31. Migration and Patient Mobility in Latin America
Max William Hadler

32. The Rise of Medical Tourism to South Africa
Jonathan Crush, Abel Chikanda and David Sanders

33. Medical Tourism Developments within Turkey
Sidika Kaya, Seda Karsavuran and Ahmet Yildiz

PART V ETHICAL, LEGAL AND REGULATORY
34. Ethics Of Medical Tourism
Guido Pennings

35. Medical Tourism for Services Illegal in Patients’ Home Country
I. Glenn Cohen

36. Child Medical Tourism: A New Phenomenon
Charlotte Hamlyn-Williams, Monica Lakhanpaul and Logan Manikam

37. Hospital Accreditation and Medical Tourism
Charles D. Shaw

38. Medical Tourism and Trust: Towards an Agenda for Research
Michael Calnan and Vid Calovski

PART VI MOTIVATION, CLINICAL EXPERIENCE AND OUTCOMES
39. Putting the Thermal Back into Medical Tourism
Melanie Smith, László Puczkó and Ivett Sziva 

40. Dental Tourism
Arun Chandu

41. Transplantation Tourism in Asia: Snapshot, Consequences and the Imperative for Policy Changes
Alex Jingwei He

42. Cosmetic Surgery Tourism
Ruth Holliday and David Bell

43. Journey Without End: Travelling Overseas for Bariatric Surgery: A Qualitative Study of UK Patients Travelling for Bariatric Surgery
Johanna Hanefeld and Daniel Horsfall 

44. Cross-Border Reproductive Travel
Nicky Hudson and Lorraine Culley

45. ‘They Go the Extra Mile, the Extra Ten Miles…’: Examining Canadian Medical Tourists’ Interactions with Health Care Workers Abroad
Valorie A. Crooks, Victoria Casey, Rebecca Whitmore, Rory Johnston and Jeremy Snyder

46. Outcomes and Medical Tourism
Neil Lunt and Daniel Horsfall

Index